Camper at Night 2

Camper at Night 2

Sunday, August 5, 2012

July 2012 A Month Lost to Viral Meningitis


On July 3, I completed a productive day at work and happily left the office at 5:00 anticipating a long holiday weekend camping at a Corps of Engineers Park on Lake Seminole.  That night I went to bed and awoke sometime in the middle of the night with chills and a fever of 104 degrees.  I covered up good, took some Tylenol and suffered through the night.  The next morning I felt some better and pushed myself to go to Wal Mart with Bubba to buy our camping groceries for the weekend.  I didn’t hold up too well and when I came home to rest my fever was once again 104 degrees.  I determined that I would see the doctor the next morning.  The night was rough with high temperatures.  My neck and head ached.  It’s a wonder I didn’t die from a drug overdose because I searched the cabinet for anything that might help relieve my pain.  Bubba heated hot compresses for my head that seemed to help some and he massaged my neck until he gave out.

Long story short, I ended up the next day (Thursday) at Sacred Heart Hospital in Port St. Joe.  The doctor there did not seem alarmed by my high temperatures (although I know that I heard once your brain would “boil” if your temperature got too high).  He said that I didn’t need a spinal tap because I could move my head and neck.  I was told I had a virus and to take Tylenol for the fever.

On Saturday, I tried to reach the doctor at Sacred Heart but couldn’t so we decided to go to the Emergency Room at Gulf Coast.  Same story as Sacred Heart – I didn’t need a spinal tap, I had a virus and should take Tylenol for my fever.

The misery continued until Tuesday morning when Bubba called Dr. Barnes who agreed to see me right away.  I believe he saved my life.  He told Bubba that I was going into shock and that he was calling the ambulance and having me admitted at Bay Medical.  Most of that day is a blur, but I do remember that the first thing said by the emergency room doctor was that he was going to do a spinal tap.  I don’t remember anything until I was in my “isolated” room on a bedside toilet and I didn’t have the strength to get up.  A bald headed black man reached around me and said, “Come on, Mama, we’re putting you on that bed.”  And he did.

I began to get antibiotics and other drugs via IV - wonderful medicine that stopped my headache.  After a night of pushing fluids into me, they discovered that I had too much fluid and it had built up around my heart.  I was so swollen.  My fingers were short, fat stubs and my wedding ring felt like it was going to cause the end of my finger to drop off.  Of course, the cure for this was a lot of diuretics and I was put on fluid restrictions.  Also something had happened to the sodium in my blood and I had to take $200 sodium tablets.  I have never craved cold water so much in my life.  Eventually I felt better and began to beg the doctor to let me go home and he did (big mistake).

At home I felt like I was doing okay.  I could get up to go to the bathroom although they did not send me home with anything for my headaches which continued.  The fevers also continued, but I was at home and happy until I got up to go the bathroom and did not have the strength to get up.  Bubba helped me and we decided that we might better go back to see Dr. Barnes the next day.  The next morning on the way out the back door, my legs turned to jelly and I sat down hard on the step and of course Bubba couldn’t get me up.  He called his friend Charles to come help.  He was there e in just a minute.  I put my arm around his big strong shoulders and I’ve got to tell you it sure felt good.  His wife, Helen, asked me if he stunk because he had been working in the garden, but I assured her that he smelled wonderful to me.  Dr. Barnes sent me back to the hospital.  Wow, it took eight hours in the emergency room to get back in.  I was in isolation again, but I was where I needed to be.  That was on a Thursday and I stayed until the following Wednesday.  The doctor had said that I would go to HealthSouth from the hospital because I needed rehab to get my strength back; however, when he came in Wednesday, he pretty much said I was a strong woman to go home.  I asked about my headaches and he pointed upward and said some things only God can heal. 

Well, I’ve been at home four days.  Bubba is taking very good care of me.  I’m making myself get dressed every day and walk as much inside as I can and a lap outside also.  I am getting stronger and I do love being at home. 
We saw Dr. Barnes again who gave me my headache pills.  He said that the headache would go away when the swelling around my brain subsided.  He also said that getting well was going to take time and I should just try to do a little more everyday  He also said that it might be Thanksgiving until I’m back to normal, but I feel like I’m on the right track.

You may think that I’m writing too much about this experience, but I’m 63 years old and have never experienced anything like this before.  I truly feel for the people suffering from cancer and the other debilitating diseases that are out there.  I feel like a baby next to them, but this wasted a whole month and maybe more from my life.  I don’t want to forget it so I’m really writing this for me.  There are a lot of things/events I don’t want to ever forget.

1.       The way Bubba has taken care of me.  He has definitely passed the “in sickness and in health” vow.

2.       Amy and Darryl’s response to my illness.  Darryl was boarding an airplane when Bubba called and told him they were taking me to the hospital.  He cancelled his flight, picked up Amy and Amelia and headed to the hospital.

3.       All of Bubba’ brothers and his sister came to the hospital to be with him.

4.       While Amy was here, I would doze off and I would wake up and see here sitting on the couch reading – just watching over me.

5.       It always made me smile when Darryl came in the room.  He would have on his mask and would pull on his latex gloves and snap them like he was going to do surgery.  He has a flair for the dramatic.

6.       I received so many phone calls.  I felt so loved.  Many of the people I work with called me on a regular basis.  Both prison chaplains called or came by.  My boss has called me nearly every day and visited the hospital twice.

7.       I don’t want to forget how well I was treated at the hospital.  Everyone from the custodian to the RNs were so nice and attentive (except the one nurse from h-e-l-l), but I only had him once.

8.       I don’t want to forget the nurse who was concerned because the permanent IV they had left on my hand was hurting me.  It burned like fire when they flushed it out, but they have to leave it just in case they need it again.  She said that she was going to call the doctor early the next morning to get permission to take it out.  I kind of thought, “Yeah right”, but the next morning at 7:00 just as she was finishing her shift, she came in and took that hateful thing out.  I thought of her every time I tucked my hand under my cheek to sleep.

9.       I don’t want to forget the nurse who talked to the doctor about increasing my headache medication.  She got him to change it to every four hours instead of every six.  The nurses knew that if they got it to me on time, I would not have a headache and they were always there with it on time.  (Except the nurse from h-e-l-l who was three hours late.)

10.   I don’t want to forget the nice man from Food Service.  Somehow I got entered in the computer for a diet that was “non mechanical”, which I think meant no teeth.  Everything I got was something pulverized beyond recognition and served on mashed potatoes.  It seemed that no one was a high enough authority to change the entry in the computer.  Dr. Compton, my kidney doctor, tried twice to fix it.  I got a real pork chop and a baked potato that night and I was so excited.  I almost sucked the bone, but alas, the next morning the pulverized stuff returned.  Apparently the computer caught the mistake.  When Amy came back (surprise!) the second time she took matters into her own hands.  On Monday night she went and got us some Mexican food for supper.  I savored and smiled over every single bite.  I kind of felt bad when the man picked up my tray, but he said he understood that he would have done the same thing.

The next night we had Pizza Hut pizza supreme.  Once again each bite was a delight.  You would think that all this spicy food would not agree with me after a week of eating bland pulverized food, rest assured that it did not bother me one bit.

The next day the nice food service man came to see me and asked me if I would want a cheeseburger for lunch.  I assured him that he would be my hero if he could accomplish that.  It seems that the computer allows that for a “non mechanical” diet because of the ground beef.  He was so proud when he delivered it and I assure you that I enjoyed every bite.  On my last day, right before I was released he came in to tell me that I had finally been corrected in the computer to a “regular diet” and with great excitement he informed me that tonight was FRIED CHICKEN NIGHT.  I sadly informed him that I was going home and going to regret missing the fried chicken, but I did thank him for all the personal attention he gave trying to please me.

UPDATE:

I have now been at home since Wednesday, July 25.  I feel like I’m getting stronger every day.  Last Thursday I went to an eye doctor appointment, a drug store, ate lunch at Golden  Corral (with Bubba fixing my plate), and got to go back by the prison for a short visit.  It was my best day so far.

Saturday was our 46th Wedding Anniversary and I felt like going out for lunch.  We made the hour long scenic drive to East Point where we ate at Captain Snook’s.  It was delicious.  Bubba has really proven himself as an excellent care giver over this past month.  I’m very blessed.  This is it on my health until I am able to go back to work.  I hope that it won’t be too much longer.

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